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Search Sign Up Sign In Main My Page Members Photos Videos Forum Groups Chat Welcome to Sign Up or Sign In Groups Skeletal Issues 158 members Living With Chronic Pain 84 members Marfan International 169 members Spontaneous Mutations 47 members Eye Support 53 members View All New Healthcare Management Tool Available - Secure and FREE The Marfan Foundation and VASCERN, the European Reference Network, are powering the first-ever E3 International Summit: Educating, Empowering, and Enriching Our Community. The online event will provide unique access to presentations and live question and answer sessions on Marfan, Loeys-Dietz, VEDS (vascular Ehlers-Danlos), Stickler syndrome, and related conditions. Summit registration is free, but is required to participate in sessions. More than 850 have already registered – are you in? Over the course of three weeks – from August 25 through September 12 – the E3 Summit features nearly 70 presentations in seven languages: English, Spanish, Italian, French, German, Dutch, and Russian. Presentations will include live and pre-recorded talks, along with live question and answer periods with the experts. Presentations commence at 12 noon Eastern Time and 7:30 pm Eastern Time to accommodate people in most parts of the world. E3 Summit highlights include: Medical experts from nine different countries: US, Canada, Spain, Belgium, Italy, Germany, England, France, and The Netherlands Presentations on the ABCs of Marfan in seven different languages Research talks that address recent breakthroughs and hope for the future Several specialized talks on each of the following conditions: Marfan, VEDS, Loeys-Dietz, Stickler Syndrome, and Heritable Thoracic Aortic Conditions A focus on treating and coping with pain, with presentations on pain management, building resiliency, physical therapy, and medical marijuana Presentations that address children’s medical issues related to Marfan, VEDS, and Loeys-Dietz, as well as how to deal with your child’s school, anti-bullying techniques, and preparing your child for surgery Presentations on pregnancy, foot and ankle pain, eye issues, dental concerns, lung issues, and more Talks on topics that can enhance quality of life, such as the healing power of laughter, art therapy, and mental fortitude Opportunities to connect with other people in the worldwide community through the Summit app Participation in the Summit requires a desktop or laptop computer, tablet, or smartphone as all presentations will be online. To register, please go to Marfan.org/E3Register. We hope you can take advantage of this incredible opportunity to hear information from the experts and meet people from all over the world – from the comfort of your own home! Latest Activity Cindy left a comment for Susan Leshen, LCSW 7 hours ago Susan Leshen, LCSW left a comment for Cindy 9 hours ago Cindy is now a member of 9 hours ago Welcome Them! Cory Jones posted a status "A couple of months ago i did genetics testing and i found out that it came back negative , is there a possibility that i still have marfan." Tuesday 0 Comments More... RSS Forum Am I Marfanoid and what to do during the COVID-19 outbreak? 1 Reply Started by Nik Priv in Uncategorized . Last reply by Nik Priv Mar 16. Stomach issues 2 Replies Started by Cory Jones in Uncategorized . Last reply by Cory Jones Mar 15. ive tissue and menstruation cycle 2 Replies Started by Adreanah McLaughlin in Uncategorized . Last reply by Adreanah McLaughlin Feb 2. Add a Discussion View All Members View All Videos Marfan Syndrome Patient Describes Surviving Aortic Dissection Added by Michael B Melissa daddy and friends singing there was a curvy girl Added by Jonathan Keller Melissa and daddy there was a curvy girl Added by Jonathan Keller Add Videos View All Photos Add Photos View All Birthdays Birthdays Today Barbara Allen Give a Gift Brenda Corbett Give a Gift carlos joel Give a Gift Don Bosbery Give a Gift dyllin joseph bates Give a Gift Jennifer Graham Give a Gift JK Give a Gift Lena Espinoza Give a Gift Leslie Beuley Give a Gift moi Give a Gift Morgan Ritnour Give a Gift Nana Tigger Give a Gift Rob James Give a Gift Shahama Parveen Give a Gift Sue Ann Wierenga Give a Gift Tim C. Smith Give a Gift Tina Caporelli Give a Gift Vivi Give a Gift Wade McConnell Give a Gift Wendy S McMonigle Give a Gift © 2020 Created by The Marfan Foundation. Powered by Badges | Report an Issue | Terms of Service Hello, you need to enable JavaScript to use . Please check your browser settings or contact your system administrator. Sign in to chat!...